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All new and active discussions & journals

New group in Inspire: The National Body Challenge

Brian
  • By Brian · New reply 10:50 am
  • Journal · 12 replies
  • I am pleased to announce that today we added a new group to Inspire: The National Body Challenge. nationalbodychallenge We created this group in partnership with Discovery Health. The group focuses on ...

ALS-Major League Baseball - Lou Gehrig Day

pjf
  • By pjf · New reply 9:48 am
  • Discussion in National ALS Advocacy Day · 4 replies
  • "Batting for the Cure" Newsweek, Nov. 1, 2008 advocates July 4, 2009 as Lou Gehrig Day - a FUNDRAISER for ALS. The 70th anniversary of Lou Gehrig's famous speech at Yanke Stadium. What role is ALS National ...

Anyone out there with Familial ALS?

jtrump
  • By jtrump · New reply yesterday at 5:01 pm
  • Discussion in Familial ALS · 27 replies
  • I am looking for other families with Familial ALS who might be able to share information with me. I am curious to know if anyone has heard of any current studies going on that we could possibly be involved ...

limited mobilty

eric59nj
  • By eric59nj · New reply January 3, 2009
  • Discussion in Familial ALS · 1 reply
  • I was diagnosed with ALS at the end of Nov. I have atrophy in my left arm and my legs are weakened . I recently discovered my muscle in my left lung wasnt working. My question is a have a very difficult ...

I wonder what others may know, about this product.

reykr
  • By reykr · New reply January 3, 2009
  • Journal · 3 replies
  • http://www.lef.org/magazine/mag2007/may2 007_report_cimetidine_01.htm ...

WOW!

jenaemk
  • By jenaemk · New reply December 31, 2008
  • Journal · 5 replies
  • My daddy was diagnosed with ALS on Monday. I am devestated and to me that is even an understatment because I can't even begin to describe the overwhelming amount of emotions and thoughts that are developing ...

ALS and my beloved aunt

Sue13
  • By Sue13 · New reply December 30, 2008
  • Journal · 3 replies
  • Hi there I am new here and have been reading alot regarding ALS and searching for little new discoveries but not much yet. My aunt 63 years has been suffering from ALS for the past 2 years now and has ...

youtube surfin, videos on ALS

BobbyB
  • By BobbyB · New reply December 22, 2008
  • Discussion in ALS and the military · 1 reply
  • youtube ---------------------------------------- ---------------------------------------- Lou Gehrig's Disease: The Military Connection and ALS http://www.youtube.com/watch?v=5gReBjAgT Lk ALS - Amyotrophic ...

holidays

greensmile
  • By greensmile · Posted December 21, 2008
  • Journal · 0 replies
  • happy hanukah and merry christmas to everybody.may the holiday season bring light and cheer to all,and the new year bring good tidings and lots of smiles to all ...

2009 A Midwinter Night's Dream Launch Party

BobbyB
  • By BobbyB · Posted December 20, 2008
  • Journal · 0 replies

A Midwinter Night's Dream Marketing Video. www.amnd.org for more details

BobbyB
  • By BobbyB · Posted December 20, 2008
  • Journal · 0 replies

Gifts For PALS

alsgny
  • By alsgny · New reply December 19, 2008
  • Discussion in Children and families · 12 replies
  • Looking for some gift ideas for a holiday gift guide for the ALS Association Greater New York Chapter's newsletter and website. Anything people can think of as appropriate gifts for PALS would be very ...

thank you

wifeofgrandpa55
  • By wifeofgrandpa55 · Posted December 17, 2008
  • Journal · 0 replies
  • for starting this website. it is nice to know that there is support out there. thanks to the mda and alsa for all of the support they have given us recently. if anyone needs help, don't hesitate to contact ...

Petition to make July 4th National ALS Day

BobbyB
  • By BobbyB · New reply December 17, 2008
  • Discussion in National ALS Advocacy Day · 2 replies
  • Petition to make July 4th National ALS Day http://www.petitiononline.com/122296/pet ition.html To: All Major and Minor League Baseball Franchises, US Congress, US House of Representatives On April 30th ...

Why are we here?

Brian
  • By Brian · New reply December 16, 2008
  • Journal · 136 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Inspire

afbtttl
  • By afbtttl · Posted December 16, 2008
  • Discussion in National ALS Advocacy Day · 0 replies
  • http://www.xconomy.com/boston/2008/12/11 /online-communities-meet-clinical-trials -inspires-co-founder-on-social-networkin g-health-20-and-trust ...

ALS and FTD

Tmills
  • By Tmills · New reply December 10, 2008
  • Journal · 9 replies
  • My mother has both ALS and FTD (frontotemporal dementia). I am wondering if there are others out there that maybe experiencing these 2 diseases hand-in-hand? She was first diagnoised with FTD and 4 months ...

A PALS' Gift

BobbyB
  • By BobbyB · New reply December 7, 2008
  • Journal · 1 reply
  • A PALS' Gift When Dan Garry found out that Shawn O’Neill had ALS he asked his neighbor what his plans were. Shawn said he was going to “take it one day at a time.” The small community of houseboats that ...

Videos of Equipment for People with ALS - Cough Assist, Computer, and Stand

BobbyB
  • By BobbyB · Posted December 5, 2008
  • Journal · 0 replies
  • Respironics Cough Assist video http://www.youtube.com/watch?v=DlPyFkrT0 Yk&eurl=http://cureals.wordpress.com/hea drest/&feature=player_embedded This video is of Shartrina and I using the cough assist ...

LEARNING TO FALL VIDEO Each click earns a buck for Augie's Quest, and best

BobbyB
  • By BobbyB · New reply December 3, 2008
  • Journal · 4 replies
  • Lowen & Navarro - Learning To Fall (with The ALS Choir) LEARNING TO FALL VIDEO Each click earns a buck for Augie's Quest, and best of all, it's free! "Learning To Fall" video is the easiest way to assist ...

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The ALS Advocacy Support Community connects patients, families, friends and caregivers for support and inspiration. The ALS Advocacy Support Community is sponsored by The ALS Association in partnership with Inspire.