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All new and active discussions & journals

New feature: video!

Brian
  • By Brian · New reply yesterday at 7:04 pm
  • Journal · 18 replies
  • I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...

What do I miss about life before my injury?

tammysci
  • By tammysci · New reply yesterday at 5:18 pm
  • Journal · 8 replies
  • In the last couple of months people have asked me what I miss about my life before my injury. The answer is everything! How could I not miss things, it changed everything about how I thought my future ...

Trying to win the war on pain

tammysci
  • By tammysci · Posted yesterday at 2:17 pm
  • Journal · 0 replies
  • Over the past 15 years I have struggled with pain and it can be very frustrating. When I wake up the first 15 minutes of my day are the worst. I even bought a new mattress this year to try to help my ...

Gifts For PALS

alsgny
  • By alsgny · New reply yesterday at 10:03 am
  • Discussion in Children and families · 9 replies
  • Looking for some gift ideas for a holiday gift guide for the ALS Association Greater New York Chapter's newsletter and website. Anything people can think of as appropriate gifts for PALS would be very ...

Handicap Parking Abusers: Part 2, Top 10 Excuses

tammysci
  • By tammysci · New reply November 18, 2008
  • Journal · 6 replies
  • Most people have witnessed people parking illegally in a handicap spot, and maybe have even wondered what their disability is? If you have a disabled placard/license plate, you probably have heard some ...

Why are we here?

Brian
  • By Brian · New reply November 16, 2008
  • Journal · 124 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Veteran's Day - A day to remember and honor our heroes!

tammysci
  • By tammysci · New reply November 14, 2008
  • Journal · 5 replies
  • Veteran's Day was not a day that meant much to me personally until I started meeting veterans coming back from Iraq. I was surprised to find out that the amount deaths because of the war in Iraq was 4193 ...

Alternative Treatments

WayneLampe
  • By WayneLampe · New reply November 14, 2008
  • Discussion in Medicare prescription drug benefit · 12 replies
  • I have tried many. I e-maile this DR Strande in CA He called me and offerd hope of taking natrual medicinces. I have been down that road once. Has anyone heard good or bad. Simply Healing Clinic Rockfield ...

Handicap Parking Abusers; Part 1- Excuses, Excuses, Excuses

tammysci
  • By tammysci · New reply November 14, 2008
  • Journal · 50 replies
  • I have read many different blogs from people with various disabilities about their frustrations with people who abuse handicap parking. I have wanted to start a handicap parking enforcement program for ...

Need to talk?

missinmyangel
  • By missinmyangel · New reply November 12, 2008
  • Discussion in Children and families · 9 replies
  • I lost my Aunt,47 ,on June 8th. I lost her physical being but have gained an Angel. I was a caregiver and AM a friend to anyone,afflicted by this horrible disease. Boh the diagnosed and their families ...

Traveling Tips Part 1: Renting a car if you have a disability

tammysci
  • By tammysci · New reply November 12, 2008
  • Journal · 5 replies
  • Traveling Tips Part 1: Renting a car In the past 15 years since I have been using a wheelchair, traveling has never been easy, but I don’t let it stop me. Just a few weeks ago I had to go to Atlanta ...

Newsweek Magazine wk of November 10, 2008

Chuck1106
  • By Chuck1106 · New reply November 12, 2008
  • Journal · 7 replies
  • I just received my Newsweek magazine. I was flipping through it, and in the MY TURN page a story about a man who has ALS. Michael Goldsmith wrote an interesting article about ALS. I would put the whole ...

My "Always Laughing Society"

Carol9
  • By Carol9 · New reply November 9, 2008
  • Journal · 4 replies
  • I am 58 years old and was diagnosed with ALS in January, 2006, although I started experiencing symptoms last summer. I am a teacher and told my school and students immediately. They had all noticed the ...

What's the difference between “Barrier Free” and "ADA" apartments?

tammysci
  • By tammysci · Posted November 3, 2008
  • Journal · 0 replies
  • When you use a wheelchair it can be hard to find accessible apartments and housing. Over the last 10 years, I have always been someone that rented an apartment and at one time I even had a small house ...

Team IPLEX demonstration in Washington DC -- 11/11/08

Eddiespaza
  • By Eddiespaza · Posted November 1, 2008
  • Discussion in National ALS Advocacy Day · 0 replies
  • http://www.youtube.com/v/Qx_7S0eNIZo Dear friends, family, PALS, Please review/double click the Hyperlink above. This video basically says it all about the mission Edward W. Esparza 847-678-1874 e.esparza@comcast.net ...

LOU GEHRIG’S DISEASE DEMONSTRATION!

Eddiespaza
  • By Eddiespaza · New reply November 1, 2008
  • Discussion in National ALS Advocacy Day · 3 replies
  • URGENT! FORWARD THIS IMPORTANT INFORMATION TO ALS PATIENTS, FAMILY AND FRIENDS NOW! BE THERE IF YOU CAN! YOUR SUPPORT IS IMPERATIVE! WITH YOUR HELP WE CAN SUCCEED! ONLY 2 WEEKS LEFT! FOR IMMEDIATE RELEASE ...

The other ugly side of ALS

swhite-geo
  • By swhite-geo · New reply October 30, 2008
  • Journal · 8 replies
  • I've been thinking about writing this for alot longer than I care to admit. My wife of 14 years left me, at my request, back in May. Without getting into too much detail, and out of respect for what we ...

Just need to talk about it.

CMF88
  • By CMF88 · New reply October 29, 2008
  • Journal · 5 replies
  • I have a sick grandmother who is only 60 years old this year. She was diagnosed with ALS in August 2008. It started in her leg and now is moved to her arm. Today my grandfather took her to a ALS clinic ...

Letter to Editor this Veterans Day. 11/11/08

BobbyB
  • By BobbyB · New reply October 29, 2008
  • Discussion in ALS and the military · 1 reply
  • Letter to Editor this Veterans Day. 11/11/08 Please send this letter to your local news papers. From the website of advocate4als.org Thank You VETERAN'S DAY - November 11 To the Editor When we honor our ...

Time for People with Disabilities to vote- Your Voice and Vote Counts!

tammysci
  • By tammysci · New reply October 29, 2008
  • Journal · 13 replies
  • According to a website on the census of how many people have disabilities of some sort in the United States; are about 58 million people. With that amount of people affected by disabilities in the United ...

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The ALS Advocacy Support Community connects patients, families, friends and caregivers for support and inspiration. The ALS Advocacy Support Community is sponsored by The ALS Association in partnership with Inspire.